My Trigeminal Neuralgia Story Directory. See 24 stories below on Trigeminal Neuralgia Facial Pain in videos and website story.

8 min 42 second pain slide show below.

Trigeminal Neuralgia Facial Pain Slide Show TN TNA Tic 4153 views.

Welcome, THIS WEBSITE IS DESIGNED TO HAVE EACH TRIGEMINAL NEURALGIA patient tell there story from the beginning of the problem to the current status which is understandably changing daily as the body processes more of the pain. My personal story is very long and and be seen at www.IamFightingCancer.com To seen some of the multiple TN stories on the net go to.

MyTrigeminalNeuralgia.com/Multiple-Stories/On-TN.html

http://www.MyTrigeminalNeuralgiaStory.com/HoustonSupportGroup/Meeting.html

www.MyTrigeminalNeuralgiaStory.com/Inside
EditionVideo/TN.wmv

Brian Nelson, Owner
Webpage Marketing Consultant
31 Gessner Rd. , Houston, TX 77024
713-467-3025 Click: E-mail me
You can find this site again by typing in the Google search engine the unique word "1yrotSNTyM" which is OR "MyTNStory1 " backwards.

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Directory of Video Sites
Blue Box 1 Scan Below

Click Brian Nelson's www.PartyTentCity.com for party tents, canopies and awnings. Today's Sale 26'x40' Tarp. Silver. Regular price is $104.00. With this ad it is on sale for only $88.00. Shipping is $15. No charge for shipping if tarp is picked up at 31 Gessner Rd. in Houston, TX 77024 Use PayPal to Brian@NelsonIdeas.com or Call Brian 713-467-3025.
Blue Box 1 Contact Brian at 31 Gessner Rd. Houston, TX 77024 Tel. 713-467-3025 Cell 713-927-4479 Click: E-mail me
www.IamFightingCancer.com Bookmark this page now! Anything Internet
http://www.NelsonIdeas.com/Directory-All-Websites/Alphabetical.html
09/24/2009 02:35 PM -0500

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Directory of Sites
Blue Box 2 Brian Nelson

Do you need a party tent of white or silver tarp? Go to www.PartyTentCity.com or to see all my links go to: http://www.PartyTentCity.com/PTC/Websites.html
Today's special sale: Business is slow. Call me right now while this include page is up and get a 23% discount off any www.PartyTentCity.com order. No charge for shipping if picked up at 31 Gessner Rd. in Houston, TX 77024 Use PayPal to Brian@NelsonIdeas.com or Call Brian 713-467-3025. http://www.NelsonIdeas.com/Directory-All-Websites/Alphabetical.html
Blue Box 2 Bookmark this page now!
Contact Brian at 31 Gessner Rd. Houston, TX 77024 Tel. 713-467-3025 Cell 713-927-4479 Click: E-mail me
www.IamFightingCancer.com

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You are at: http://www.MyTrigeminalNeuralgiaStory.com/ ud 08/29/2009 10:08 AM -0500 Bookmark this page now!

Misspelled words used to find this page 1 of 3.
Page Alt Tags 6, Trigeminal Neuralgia Minneapolis TN Pain Personal Story, Balloon Compression Mentor, dysesthesia, bad feeling constant spasm. excruciating pains, Henry, Pneumonia Electrical Shocks, Shirley, Shelly Wilson, Support Group, Education, Association, Stabbing, Jolts, Suicide Disease, Neuropathic, rare Disorder, Treatment, destructive surgery, Procedure, Microvascular Decompression, tic douloureux Marge Prietz

Patient

Pain Type

Pain Started

Cause of Pain or Treatments Tried

Address of Website

1 Brian Nelson

Electrical Shocks Left Side

May 2004

Tumor Parotid Salivary Gland
http://www.MyTrigeminalNeuralgiaStory.com/BrianNelson/TN1.html

http://www.IamFightingCancer.com

2 My Trigeminal Neuralgia Template

http://www.MyTrigeminalNeuralgiaStory.com/PersonalTemplate/TN2.html

3 Shirley H 2004

http://www.MyTrigeminalNeuralgiaStory.com/ShirleyH/TN3.html

4 SandiW 2005

http://www.MyTrigeminalNeuralgiaStory.com/SandiW/TN4.html Atypical Facial Pain.

5 Charlotte McLaughlin 1992

http://www.MyTrigeminalNeuralgiaStory.com/CharlotteMcLaughlin/TNPatient.html

6 Molly Harker

http://www.MyTrigeminalNeuralgiaStory.com/MollyHarker/TN6.html

7 Erin

http://www.MyTrigeminalNeuralgiaStory.com/Erin/TN7.html

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4 Youtube Video Marge Prietz 1 of 2 Trigeminal Neuralgia 1972 to 2007 Click on the arrow.

Electrical Shocks
Right Side

1972 2 MVDSBlood Vessels Intertwined With Nerves in the Brain.

5 Youtube Video Marge Prietz 2 of 2 Trigeminal Neuralgia 1972 to 2007 Click on the arrow.

Electrical Shocks
Right Side

1972
2 MVDSBlood Vessels Intertwined With Nerves in the Brain.

5 YouTube Videos Jennifer

322 Views

Video started
4-20-07 Trigeminal
Neuragia and Bells Pals Also has Bipolar Disorder.

Jennifers Statement on Youtube. Click Here LIghtening Type Pain on the left side of her face

6
YouTube Videos Dr. Report Johns Hopkins Hospital.

Dr Benjamin Carson at Johns Hopkins

7 Video 1 of 6 is 4 Minutes 56 Sec. Neurosurgeon Dr. Rob Parrish speaks to the Houston Trigeminal Neuralgia Support Group about the Microvascular Decompression Operation better known as the MVD. Click here or on the arrow in the picture.

8 Video 2 of 6 is 5 Minutes 3 sec. Neurosurgeon Dr. Rob Parrish speaks to the Houston Trigeminal Neuralgia Support Group about the Microvascular Decompression Operation better known as the MVD.
Click here or on the arrow in the picture.

9 Video 3 of 6 is 5 Minutes 34 sec. Neurosurgeon Dr. Rob Parrish speaks to the Houston Trigeminal Neuralgia Support Group about the Microvascular Decompression Operation better known as the MVD.
Click here or on the arrow in the picture.

10 Video 4 of 6 is 5 Minutes 7 sec. Neurosurgeon Dr. Rob Parrish speaks to the Houston Trigeminal Neuralgia Support Group about the Microvascular Decompression Operation better known as the MVD.
Click here or on the arrow in the picture.

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11 Video 5 of 6 is 4 Minute 38 sec. Neurosurgeon Dr. Rob Parrish speaks to the Houston Trigeminal Neuralgia Support Group about the Microvascular Decompression Operation better known as the MVD.
Click here or on the arrow in the picture.

12 Video 6 of 6 is 2 Minutes 12 sec. Neurosurgeon Dr. Rob Parrish speaks to the Houston Trigeminal Neuralgia Support Group about the Microvascular Decompression Operation better known as the MVD.
Click here or on the arrow in the picture.

Enjoy the videos! Note: These video clips are created in Windows Media Player and optimized for fastest loading time. If click on on the movie image below does not work please go to http://www.texastna.org/videos.html and click on the icon there.

14TNA V13. Click hre for this video everyone is talking about! See a frank and revealing 5 minute video that includes a diagnosis of Trigeminal Neuralgia and the subsequent surgery and outcome of a Microvascular Decompression, MVD. See Dr. Johnathan White and senior citizen patient who has been in significant pain. See how this operation in the brain has reduced his pain. He was ready was die rather than to have to live with this staggering pain. He would not have minded if he died on the operating table.

He has just a few minor twitches now. He was depressed without hope. Now he may live another 7 or 8 years. he is excited about life once again.

Occipital Neuralgia Part II

2 of 2. 6 minutes 51 Seconds. This is the video everyone is talking about! See a frank and revealing 5 minute video that includes a diagnosis of Trigeminal Neuralgia and the subsequent surgery and outcome

Click for more on Stimulators and Neurovascular Intervention http://www.MyTrigeminalNeuralgiaStory.com/Stimulators/NeurovascularIntervention.html

See the video on occipital neuralgia pain reduction using a Motor Cortex Stimulator in his head ":

NEW! Severe Occipital Neuralgia - Bobby Sorrell Starkville, Mississippi suffers from an almost incapacitating disease. See how surgery changed his life! Click the Black Camera icon with red wording on: http://www.texastna.org/videos.html It looks like this:

1 of 2. 6 min. 48 seconds. NEW! Occipital Neuralgia - Bobby Sorrell suffers from an almost incapacitating disease -- see how surgery changed his life!

Bobby Sorrell and his wife Amy give you a first... (more)

Added: October 03, 2007 Bobby Sorrell and his wife Amy give you a first hand look into the world of an Occipital Neuralgia patient and the surgical option they choose to improve their situation. Filmed for the Texas Trigeminal Neuralgia Support Group in association with TNA and UT Southwestern Medical Center.

People involved: Shelly Wilson, Dr. Tony Whitworth, Neurosurgeon. UT Southwestern, Dallas, TX. Changes were made from Opiod and Morphine Medication to a Motor Cortex Stimulator to curb extreme pain. IT is powered by a permanent battery from Medtronic No. 3771 in a pocket of skin just under Bobby's collar bone. Bobby is pain free now by the number of pulses per second regulated by him. Main support Wife, Amy and Patsy, Lessie and will Sorrell. Julie Carlsen Ph. D. MSN, MSA is the Therapy Consultant Medtronic Neurological " Medtronic, Inc.
"You Performed a Miracle with me" Bobby Sorrell said after the surgery.

2 Texas TNA Support Website http://www.texastna.org/videos.html

TNA 15. Just who is Shelly Wilson? Dr. Jonathan White and Dr. Micheal Pasternak conversation. Shelly Wilson is a multitalented compassionate organizer of very large national events that involve hundreds of dynamic time sensitive projects.What a blessing TNA is to have her volunteering her time to help so many people.

16 TNA V15. What can TNA do for you? Shelly Wilson speaks with Dr. Pasternak about TNA’s role and mission How can the Trigeminal Neuralgia Assoication help you.
The picture on the right is from the Regional Patient Conference and CE Course on Trigeminal Neuralgia and Chronic Facial Pain Held at NYUCD
TNA conference organizers, from left: Dr. Michael Pasternak, President of the Trigeminal Neuralgia Association (TNA); Ms. Shelly Wilson, conference coordinator; and TNA Medical Advisory Boad members Dr. Jeffrey Cohen, Dr. Peter Jannetta (Chairman of the Board), and Dr. David A. Sirois.

17 TNA V16 2006 National Conference in Portland Oregon in September 14-18, 2006 Slideshow (high quality, slower load) Slides Taken by Brian Nelson

18 TNA V17. 2006 National Conference in Portland Slideshow (low quality, faster load) Slides Taken by Brian Nelson

Enjoy the videos! Note: These video clips are created in WindowsMedia Player and optimized for fastest loading time.

19 Trigeminal Neuralgia
http://youtube.com/watch?v=JZEigMd4GpY
A patient suffering from Trigeminal Neuralgia (extreme facial pain) has breakthrough neurosurgery, microvascular decompression, to resolve the pain & restore quality of life.~Detroit Medical Center

Featuring Dr. Ken Casey Detroit Medical Center

Added: October 29, 2007 Views: 7,208

Tags:

Kenneth Casey MD detroit receiving hospital dmc medical center trigeminal neuralgia extreme facial pain

20 The Wellmont Connection - Trigeminal Neuralgia
Cyberknife

http://www.youtube.com/watch?v=MhaFZDMEgog

Added: January 21, 2008 (Less info)

Elizabeth suffered from trigeminal neuralgia, a rare nerve disorder that caused excruciating pain in her face. However, a new treatment with Wellmont Health System's CyberKnife cured her condition and restored her quality of life

Category: Education

Tags:

Facial Face Pain Trigeminal Neuralgia CyberKnife Wellmont BRMC health

21 Neuralgia del Trigemino. Janetta 1.mov

Clear video but not much else. No sound or English text.

http://www.youtube.com/watch?v=qYzgeuQCiw8&NR=1

Videos resúmenes de algunas intervenciones realizadas en el Servicio
Translation: Spanish » English

    Videos summaries of some statements made in Service

22 Patient Story Blog / April - Trigeminal Neuralgia

The Story of April on the UCLA Health System Network.

It all started a year and a half ago, a couple of weeks before a family trip to Las Vegas. I felt dental pain in my left lower jaw and went to the dentist. Dental X-rays did not show any problems, but I had begun grinding my teeth so the dentist made me a bite guard and gave me a prescription for Vicodin. He also sent me to an endodontist, but there was no indication that I needed a root canal.

By the end of our trip, I was in such pain that it was unbearable to eat, talk, or even smile. When we returned home to LA, the dentist suggested doing a root canal "to see" if that would rid me of my pain. I said "no thanks." But I was still in pain so I went to see another dentist who specialized in TMJ. He did a panoramic X-ray of my mouth, which came back normal. Upon examination, it was determined that I had a slight case of TMJ and needed a second (very expensive and mostly not covered by insurance) bite guard made. It didn't help.

Several months later, the pain intensified. My regular dentist still could not determine the source of pain and referred me to a different endodontist. By then, I had done my own research and although I didn't display classic root canal problems, I thought perhaps I had a hairline fracture deep in my tooth. I was so desperate for relief that I was open to, and proceeded to have, first one, then another root canal. But the pain didn't go away.

The constant pain was wearing me down and made it difficult to take care of my little ones (now ages 5 and 3). Out of frustration and desperation, I googled my symptoms on the internet and came across something called "trigeminal neuralgia" (TN). A family friend who is a neurosurgeon, Dr. Tony Feuerman, referred me to a neurologist, Dr. P.B. Andersson. My MRI scans ruled out brain tumors and I began taking Lyrica, working up to 150 mg doses twice a day. It helped take the edge of the pain at times, but it would always return.

Around the New Year the pain started to worsen again, so my neurologist added a second medication, Carbatrol (200 mg twice a day). I was already tired from the Lyrica, and the added medication increased my fatigue. Three months later, the medication was deemed ineffective and my neurologist referred me to Dr. Antonio DeSalles, a Radiosurgery expert at UCLA. Dr. DeSalles specializes in minimally invasive gamma knife (radiation) treatment, which involves partially deadening nerves with precise doses of radiation. After reviewing my records, Dr. DeSalles said that gamma knife treatment was an option, but that based on my age and relatively good health he strongly recommended microvascular decompression surgery and referred me to Dr. Neil Martin, head of UCLA Neurosurgery. Both my neurologist and neurosurgeon friend said that Dr. Martin is the "Best in the West" for this specialized procedure.

Dr. Martin explained the procedure and its possible side effects. Basically, an incision is made and a nickel sized hole drilled in the skull. Using microscopic instruments, Dr. Martin would locate, separate, and stop the compression of the blood vessels pressing against the trigeminal nerve (which was the cause of pain). It's still hard to imagine that something happening inside my head was causing pain in my jaw.

Microvascular decompression is low-risk major surgery and if successful, would completely cure me. While the thought of undergoing brain surgery was scary, the thought of being pain and medication-free was more compelling. Planning for a 2-4 week recovery time, I decided to schedule the procedure in early summer when my sister, a schoolteacher in Hawaii, could help me with the house and kids. However, by the end of March, my pain was continuing to worsen and I could wait no longer.

On April 17, I underwent a six hour surgery. Dr. Martin found and addressed three areas that were compressed. During the initial recovery period, I was not able to fully appreciate being pain-free. I experienced normal side-effects like headaches and double-vision. But by the time I was off all medication and my sutures were removed, I started feeling better for the first time in awhile. I still felt fatigue four weeks after surgery, but was comforted to learn that it would be a month or two before I felt 100% like myself. It has now been just over two months and I am happy to report that I am fully recovered and that the constant, unbearable pain caused by TN is gone for good.

I am so very grateful for Dr. Martin (THANK YOU, DR. MARTIN) and his great expertise, patience, and precision. He gave me my life back. I can read to my kids again and joke with them (I told them that the doctor took out the grumpy bug). Dr. Martin's staff (Jennifer, Antoinette and everyone) was so efficient and my admission and hospital stay went very smoothly. The neuro-recovery ward nurse, Audry Hamill, was especially terrific. I was discharged from the hospital on my birthday and she brought me a cake. This gift was actually "the icing on the cake" since Dr. Martin's gift of making me pain-free was the best possible birthday present.

In hindsight, I wish I had done the surgery even sooner instead of hoping and waiting to see if the medication would eventually work (in a last ditch futile effort to avoid surgery, I even had a tooth extracted and now must face a dental implant).

I feel so fortunate to have a supportive husband and family (a great sister and the best sister-in-law) who helped with my kids and home in many times of need, and the friends who showed so much care and concern throughout my ordeal

23 Trigeminal Neuralgia Part I

An educational video about Trigeminal Neuralgia (A.K.A Tic Douloureux) and Microvacular Decompression, a procedure that can cure the crippling facial pain associated with Trigeminal Neuralgia. This video contains personal testimony from both P. Jeffrey Lewis,M.D.- the surgeon, and patients who have had the Microvascular Decompression Procedure. Also, live pictures & video from the actual procedure as viewed through the operating microscope are presented.

Click here. Part 1 http://youtube.com/watch?v=4iQ1rqxrriA

24 Trigeminal Neuralgia Part 2

Click here. Party 2. http://youtube.com/watch?v=U_XO4ZGgwWY

iTags. Crippling Facial Pain Cranial Nerve P. Jeffrey Lewis Tic Douloureux Buffalo Neurosurgery Group Minimally Invasive

Trigeminal Neuralgia
Extreme
Facial
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YouTube.

From
NelsonIdeas.com

Trigeminal Neuralgia
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TN
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Trigeminal Neuralgia
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Trigeminal Neuralgia
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My Trigeminal Neuralgia Extreme Facial Pain TN Websites
http:/./www.NelsonIdeas.com

Click Dental Education Trigeminal Neuralgia Extreme Facial Pain
http://www.NewMedicalDirectories.com/Trigeminal-Neuralgia-Dental/Dentist-Dentists.html

Click Trigeminal Neuralgia Patient Painful-Stories
http://www.BrianNelsonConsulting.com/trigeminal-neuralgia-tn/patient-painful-stories.html

Click My Trigeminal Neuralgia (TN) Story only http://www.PartyTentCity.com/mytnstory.html

Click My Story on TN Brian N
http://www.PartyTentCity.com/trigeminal-neuralgia-tn-tmj-my-story/directory.html

Click Trigeminal Neuralgia Slide Show Story of Pain http://www.NewMedicalDirectories.com/Trigeminal-Neuralgia-Slide-Show/Draft.html

Click Medical Data Base Medical Costs More Expensive Due to Non Use of Technology http://www.briannelsonconsulting.com/medical-data-base/faq-info.html

Click MyTrigeminal Neuralgia Story Directory http://www.MyTrigeminalNeuralgiaStory.com

Click Slide Show Draft for New TN Patients. http://www.newmedicaldirectories.com/Trigeminal-Neuralgia-Slide-Show/Draft.html

Click-Trigeminal Neuralgia Assn Page 1
http://newmedicaldirectories.com/Trigeminal-Neuralgia-Association/TN-Facial-Pain.html

Click-Trigeminal Neuralgia Assn Page 2
http://newmedicaldirectories.com/Trigeminal-Neuralgia-Association/TN-Facial-Pain-2.html

Click What is Trigeminal Neuragia? Portland,OR Slide Show
http://www.NewMedicalDirectories.com/Trigeminal-Neuralgia-Slide-Show/Draft.html

Click Trigeminal Neuralgia National Conference
http://www.NewMedicalDirectories.com/Trigeminal-Neuralgia-Slide-Show/Draft.html

Click Trigeminal Neuralgia Brian's Journal Tic Douloureux (TN) FacialPain-Cancer
http://www.BrianNelsonConsulting.com/trigeminal-neuralgia-tn/faq-info.html
http://www.BrianNelsonConsulting.com/trigeminal-neuralgia-tn/faq-info.html

Click Page 1. Trigeminal Neuralgia http://www.BrianNelsonConsulting.com/trigeminal-neuralgia-tn/faq-info.html

Click Page 2 Trigeminal Neuralgia
http://www.briannelsonconsulting.com/trigeminal-neuralgia-tn/faq-info2.html

Click Page 3 Trigeminal Neuralgia
http://www.briannelsonconsulting.com/trigeminal-neuralgia-tn/faq-info3.html

Click Page 4 Trigeminal Neuralgia
http://www.BrianNelsonConsulting.com/trigeminal-neuralgia-tn/faq-info4.html

Click MyTrigeminal Neuralgia Stories Directory
http://www.MyTrigeminalNeuralgiaStory.com/Index.html

Click Brian's TN Story Quck Version
http://www.MyTrigeminalNeuralgiaStory.com/BrianNelson/TN1.html

Click Shirley's Story Trigeminal Neuralgia
http://www.MyTrigeminalNeuralgiaStory.com/ShirleyH/TN3.html

Click Sand's Story TN
http://www.MyTrigeminalNeuralgiaStory.com/SandiW/TN4.html

Trigeminal Neuralgia
Extreme
Facial
Pain
TN
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